{"id":8078,"date":"2023-02-22T17:20:58","date_gmt":"2023-02-22T17:20:58","guid":{"rendered":"https:\/\/www.healthnews.ie\/?p=8078"},"modified":"2024-03-19T14:55:49","modified_gmt":"2024-03-19T14:55:49","slug":"gain-power-over-parkinsons-with-an-empowering-self-management-toolkit","status":"publish","type":"post","link":"https:\/\/www.healthnews.ie\/neurology\/gain-power-over-parkinsons-with-an-empowering-self-management-toolkit\/","title":{"rendered":"Gain power over Parkinson&#8217;s with an empowering self-management toolkit"},"content":{"rendered":"\n<div style=\"background-color:#f2f2f2;color:#32373c\" class=\"wp-block-atomic-blocks-ab-profile-box round ab-has-avatar ab-font-size-14 ab-block-profile ab-profile-columns\"><div class=\"ab-profile-column ab-profile-avatar-wrap\"><div class=\"ab-profile-image-wrap\"><figure class=\"ab-profile-image-square\"><img loading=\"lazy\" decoding=\"async\" width=\"250\" height=\"250\" class=\"ab-profile-avatar wp-image-8080\" src=\"https:\/\/s3.eu-north-1.amazonaws.com\/cdn-site.mediaplanet.com\/app\/uploads\/sites\/94\/2023\/02\/07210455\/L.Wynne-headshot.png\" alt=\"\" srcset=\"https:\/\/s3.eu-north-1.amazonaws.com\/cdn-site.mediaplanet.com\/app\/uploads\/sites\/94\/2023\/02\/07210455\/L.Wynne-headshot.png 250w, https:\/\/s3.eu-north-1.amazonaws.com\/cdn-site.mediaplanet.com\/app\/uploads\/sites\/94\/2023\/02\/07210455\/L.Wynne-headshot-125x125.png 125w\" sizes=\"auto, (max-width: 250px) 100vw, 250px\" \/><\/figure><\/div><\/div><div class=\"ab-profile-column ab-profile-content-wrap\"><h2 class=\"ab-profile-name\" style=\"color:#32373c\">Lisa Wynne<\/h2><p class=\"ab-profile-title\" style=\"color:#32373c\">Parkinson\u2019s Nurse Specialist, Parkinson\u2019s Association of Ireland<\/p><div class=\"ab-profile-text\"><\/div><ul class=\"ab-social-links\"><\/ul><\/div><\/div>\n\n\n\n<p><em>Power is the key to maintaining independence and good quality of life. A proactive approach with a tailored plan and tools to empower you on the journey is critical.<\/em><\/p>\n\n\n\n<hr class=\"wp-block-separator has-css-opacity\"\/>\n\n\n\n<p>The &#8216;KEES&#8217; toolkit was developed to simplify the key areas and information on the journey to empowerment and self-management of Parkinson\u2019s disease (PD).<\/p>\n\n\n<div id=\"healt-2416703915\"><div class=\"healt-adlabel\">Advertisements<\/div><div id=\"healt-3980689261\" style=\"margin-top: 30px;margin-bottom: 30px;margin-left: auto;margin-right: auto;text-align: center;\"><a data-no-instant=\"1\" href=\"https:\/\/bialive.co.uk\/\" rel=\"noopener\" class=\"a2t-link\" target=\"_blank\" aria-label=\"Bial_Desktop-AD\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/s3.eu-north-1.amazonaws.com\/cdn-site.mediaplanet.com\/app\/uploads\/sites\/94\/2024\/03\/07205919\/Bial_Desktop-AD.jpg\" alt=\"\"  width=\"750\" height=\"250\"  style=\"display: inline-block;\" \/><\/a><\/div><\/div>\n\n\n<h2 class=\"wp-block-heading\"><strong>Knowledge: what is PD?<\/strong><\/h2>\n\n\n\n<p>Parkinson&#8217;s disease is a progressive neurological disorder. The second most common neurodegenerative disease after Alzheimer\u2019s disease. Parkinson\u2019s affects an estimated 15,000 people in Ireland. It is the loss of a neurochemical called dopamine. As we age, we lose dopamine; but for those with Parkinson\u2019s, it is lost at a faster rate.<\/p>\n\n\n\n<p>It is primarily a movement disorder. However, there are 40 potential motor and non-motor symptoms associated with it. It affects slightly more men than women, with most people diagnosed after the age of 60 and one in ten under 50.<\/p>\n\n\n\n<p>As stated by Bas Bloem: \u201cSeven million people, seven million variants of Parkinson&#8217;s. In everyone, the disease manifests itself differently.\u201d<sup>1<\/sup><\/p>\n\n\n<script type=\"text\/plain\" data-tcf=\"waiting-for-consent\" data-id=\"10964\" data-bid=\"94\" data-no-track=\"impressions\">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<\/script>\n\n\n<h2 class=\"wp-block-heading\"><strong>Education: optimise symptom control<\/strong><\/h2>\n\n\n\n<p>There is currently no cure for Parkinson\u2019s, but medication can provide symptom control.<\/p>\n\n\n\n<p>With medication, it\u2019s important to ask: What is the medication? What is it expected to help? How long before you see improvement? What\u2019s the best way to take it? Also, keep a diary.<\/p>\n\n\n\n<p>Three crucial aspects to optimise medication are (1) consistent timing, (2) avoiding constipation and (3) hydration.<\/p>\n\n\n\n<p>Medication alongside relaxation and distraction techniques are key to symptom management. What works for one person may not work for the next, hence a personalised approach and plan.<\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p>There is currently no cure for Parkinson\u2019s, but medication can provide symptom control.<\/p>\n<\/blockquote>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"h-exercise-prescribe-exercise-for-all\"><strong>Exercise: prescribe exercise for all<\/strong><\/h2>\n\n\n\n<p>Exercise is essential in the management of motor and non-motor symptoms. The physical benefits of exercise include addressing balance, gait, rigidity\/stiffness and strength.<\/p>\n\n\n\n<p>Psychological benefits include building confidence and improving serotonin production, sleep, mood and wellbeing.<\/p>\n\n\n\n<p>Varied exercises adapted to your level of suitability will help. Don\u2019t forget to enjoy it, so you\u2019re more likely to continue rather than avoid it. Some exercises found to be beneficial include Tai Chi, dance, yoga and aqua therapy.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>Support: recognise and reach out<\/strong><\/h2>\n\n\n\n<p>Ready to recognise the need for support? Reach out and get involved! It can be daunting but is an essential component of the toolkit. This network can come from peer support and the wider circle of health professionals. Parkinson\u2019s Association of Ireland provides a nationwide branch network, in-person and zoom classes and opportunities to participate in ongoing research.<\/p>\n\n\n\n<div style=\"color:#32373c;background-color:#ffdd57\" class=\"wp-block-atomic-blocks-ab-notice ab-font-size-18 ab-block-notice\" data-id=\"5e5432\"><div class=\"ab-notice-text\" style=\"border-color:#ffdd57\"><p>Parkinson\u2019s Awareness week starts 11<sup>th<\/sup>\u00a0April 2023. To find out more visit\u00a0<a href=\"https:\/\/parkinsons.ie\/\" target=\"_blank\" rel=\"noreferrer noopener\">Parkinsons.ie<\/a><\/p><\/div><\/div>\n\n\n<script type=\"text\/plain\" data-tcf=\"waiting-for-consent\" data-id=\"10964\" data-bid=\"94\" data-no-track=\"impressions\">PGRpdiBpZD0iaGVhbHQtMjQwODAyODYyOCIgc3R5bGU9Im1hcmdpbi10b3A6IDMwcHg7bWFyZ2luLWJvdHRvbTogMzBweDttYXJnaW4tbGVmdDogYXV0bzttYXJnaW4tcmlnaHQ6IGF1dG87dGV4dC1hbGlnbjogY2VudGVyOyI+PGEgZGF0YS1uby1pbnN0YW50PSIxIiBocmVmPSJodHRwczovL2JpYWxpdmUuY28udWsvIiByZWw9Im5vb3BlbmVyIiBjbGFzcz0iYTJ0LWxpbmsiIHRhcmdldD0iX2JsYW5rIj48cCBzdHlsZT0iY29sb3I6ICMxZjQ1ZmM7Ij48c3BhbiBzdHlsZT0idGV4dC1kZWNvcmF0aW9uOiB1bmRlcmxpbmU7Ij5DbGljayBoZXJlIGZvciBtb3JlIGluZm9ybWF0aW9uIGFib3V0IEJJQUxJVkUsIHlvdXIgaGVhbHRoIHBsYXRmb3JtLiBIZWxwaW5nIHRvIHlvdSBrZWVwIGFjdGl2ZSwgd2hpbGUgbGl2aW5nIHdpdGggUGFya2luc29uJ3MuPC9zcGFuPjwvcD48L2E+PC9kaXY+<\/script>\n\n<div id=\"healt-868430273\"><div class=\"healt-adlabel\">Advertisements<\/div><div id=\"healt-2431986497\" style=\"margin-top: 30px;margin-bottom: 30px;margin-left: auto;margin-right: auto;text-align: center;\"><a data-no-instant=\"1\" href=\"https:\/\/bialive.co.uk\/\" rel=\"noopener\" class=\"a2t-link\" target=\"_blank\" aria-label=\"Bial_Desktop-AD\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/s3.eu-north-1.amazonaws.com\/cdn-site.mediaplanet.com\/app\/uploads\/sites\/94\/2024\/03\/07205919\/Bial_Desktop-AD.jpg\" alt=\"\"  width=\"750\" height=\"250\"  style=\"display: inline-block;\" \/><\/a><\/div><\/div>\n\n\n<hr class=\"wp-block-separator has-css-opacity\"\/>\n\n\n\n<p class=\"has-text-align-right\" style=\"font-size:11px\"><strong>[1]<\/strong> <a href=\"https:\/\/www.sciencedirect.com\/science\/article\/pii\/S014067362100218X\" target=\"_blank\" rel=\"noreferrer noopener\"><em>Bastiaan R. Bloem, Michael S. Okun, Christine Klein.&nbsp;Parkinson&#8217;s disease.The Lancet. DOI: 10.1016\/S0140-6736(21)00218-X<\/em><\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Power is the key to maintaining independence and good quality of life. A proactive approach with a tailored plan and tools to empower you on the journey is critical. The &#8216;KEES&#8217; toolkit was developed to simplify the key areas and information on the journey to empowerment and self-management of Parkinson\u2019s disease (PD). Knowledge: what is &hellip; <a href=\"https:\/\/www.healthnews.ie\/neurology\/gain-power-over-parkinsons-with-an-empowering-self-management-toolkit\/\">Continued<\/a><\/p>\n","protected":false},"author":108,"featured_media":8081,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[128],"tags":[5802],"class_list":["post-8078","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-neurology","tag-living-with-neurological-conditions"],"acf":[],"featured_image_src":"https:\/\/s3.eu-north-1.amazonaws.com\/cdn-site.mediaplanet.com\/app\/uploads\/sites\/94\/2023\/02\/07210453\/GettyImages-1159292451-600x400.png","featured_image_src_square":"https:\/\/s3.eu-north-1.amazonaws.com\/cdn-site.mediaplanet.com\/app\/uploads\/sites\/94\/2023\/02\/07210453\/GettyImages-1159292451-600x600.png","author_info":{"display_name":"Carolina Galbraith Duarte","author_link":"https:\/\/www.healthnews.ie\/author\/carolinagalbraithduarte\/"},"vicky_category_order":[{"category_id":128,"order":"3"}],"vicky_index_order":"","_links":{"self":[{"href":"https:\/\/www.healthnews.ie\/wp-json\/wp\/v2\/posts\/8078","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.healthnews.ie\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.healthnews.ie\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.healthnews.ie\/wp-json\/wp\/v2\/users\/108"}],"replies":[{"embeddable":true,"href":"https:\/\/www.healthnews.ie\/wp-json\/wp\/v2\/comments?post=8078"}],"version-history":[{"count":13,"href":"https:\/\/www.healthnews.ie\/wp-json\/wp\/v2\/posts\/8078\/revisions"}],"predecessor-version":[{"id":10965,"href":"https:\/\/www.healthnews.ie\/wp-json\/wp\/v2\/posts\/8078\/revisions\/10965"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.healthnews.ie\/wp-json\/wp\/v2\/media\/8081"}],"wp:attachment":[{"href":"https:\/\/www.healthnews.ie\/wp-json\/wp\/v2\/media?parent=8078"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.healthnews.ie\/wp-json\/wp\/v2\/categories?post=8078"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.healthnews.ie\/wp-json\/wp\/v2\/tags?post=8078"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}